| Support Organizations: |
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Epilepsy Foundation |
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Search for regional chapter of the Epilepsy Foundation. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. |
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Chelsea Hutchison Foundation |
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The Chelsea Hutchison Foundation is a Colorado non-profit corporation formed by Julie and Doug Hutchison to help individuals, particularly children and young adults, who have epilepsy. The main focus is to raise funds to pay for trained seizure-response dogs that can help detect when a person may be having a seizure, provide warnings and/or respond after a seizure by calling 911, getting help or breaking a fall.
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Danny Did Foundation |
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The Danny Did Foundation holds as its main goals: (1) advancing awareness of Sudden Unexplained Death in Epilepsy (SUDEP) and enhancing the SUDEP communication model between medical professionals and those afflicted by seizures, and (2) the mainstreaming of seizure detection and prediction devices as well as other technologies that may assist in preventing deaths caused by seizures.
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Lotsa Helping Hands |
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Web based support group organizational tool to help in times of medical crisis. In literally minutes, a Coordinator can create, free-of-charge, a private and secure Lotsa Helping Hands web community, define volunteer activities using the supplied templates, and begin inviting members to the community. Through an intuitive interface that requires no training, volunteers can then easily view and sign up for any number of available tasks, review their current commitments, and be confident they won't forget any assignments as the system automatically sends out email reminders of upcoming obligations.
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InfantileSpasms.com |
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A web based forum providing support to parents and care givers of children with Infantile Spasms.
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National Association of Epilepsy Centers |
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Search the NAEC database for a Epilepsy center near you. NAEC mission: With the goal of no seizures and no side effects, the National Association of Epilepsy Centers strives to make high quality healthcare available and affordable for epilepsy patients across the country. |
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Parent to Parent USA |
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A national non-profit promoting Parent to Parent support for families with special needs children (to include epilepsy). Offering training to "Support Parents" P2P has offices in over forty states in the US. |
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LGS Foundation |
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The LGS Foundation is a
nonprofit organization
dedicated to providing
information about
Lennox-Gastaut syndrome
while raising funds to help
pursue additional research,
services and support for
LGS families. |
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IDEA League |
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Promoting awareness and research about Dravet Syndrome and related genetic, febrile sodium channel epilepsies and to provide resources and support to improve the quality of life for affected individuals and families. |
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US East- |
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Epilepsy Life Links |
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Serving New York / New Jersey. Epilepsy Life Links exists to improve the quality of life of persons with epilepsy of all ages by providing a comprehensive array of supports and life-improvement opportunities. Epilepsy Life Links' programs focus on the physical and mental well-being of persons with epilepsy by promoting education, accessibility to health care, peer communication, and a sense of community. These programs have been developed with the epilepsy patient in mind, and are accessible to caregivers and healthcare providers. |
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FACES Apartments |
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The FACES apartments are available free of charge for the parents of children seeking treatment at the NYU Comprehensive Epilepsy Center. |
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Epilepsy Foundation of Virginia |
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The Epilepsy Foundation of Virginia provides training sessions for professionals, families and colleagues. We also have public education programs with puppets for schools and talk shows on radio and television. Consumer services include one time medication assistance, transportation assistance and general epilepsy-related emergencies. These services are exclusively for Virginians with epilepsy. |
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US Central- |
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WisconsinSeizure.net |
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The Wisconsin Seizure Control Network is a project of the Medical College of Wisconsin developed to support children with epilepsy and thier families. |
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US West- |
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International- |
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Austrilia- |
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Epilepsy Action Austrilia |
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Epilepsy Action provides education and support services to children and adults with epilepsy or other seizure disorders across Australia. |
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Canada- |
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Canadian Epilepsy Alliance |
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The Canadian Epilepsy Alliance (CEA) is a Canada wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness.
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End Trash Talk |
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Canada based with international reach and priorities! "End Trash Talk" is a venue for youth expression. Visitors can share personal stories and access the wealth of information availible on the site. |
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South Africa- |
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Epilepsy South Africa |
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The vision of Epilepsy South Africa is to provide integrated services that are equitable, accessible, sustainable and people centered with and for people with epilepsy and other disabilities and all affected by epilepsy, to promote social justice. |
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