| Informational: General, Cause Specific, History |
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General- |
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Epilepsy Foundation of America |
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The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research. |
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Massachusetts General Hospital - Growing up with Epilepsy |
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A collaboration between the MassGeneral Hospital for Children's Pediatric Epilepsy Program and WGBH Educational Foundation. Our goal is to provide clear information about epilepsy in childhood, its diagnosis, and its treatment, and to educate site visitors about the disorder's effects on learning, behavior, and family life. |
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Epilepsy.com |
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The Epilepsy Therapy Project exists to overcome the barriers to successful translation of promising new research insights and to make new therapies a reality for patients. We provide financial support and and scientific and business direction to promising new therapies, and we invest in programs and platforms that can take time and costs out of new therapy development. Our key ongoing programs include support of the leading community websites epilepsy.com and epilepsy.com/Professionals, of the Epilepsy Study Consortium (www.epilepsyconsortium.org) and of meetings including the two major international conferences on epilepsy therapy development. |
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Cause Specific- |
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Davet's Syndrome |
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Idea League |
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Promoting awareness and research about Dravet Syndrome and related genetic, febrile sodium channel epilepsies and to provide resources and support to improve the quality of life for affected individuals and families. |
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Tuberous Sclerosis |
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TS Alliance |
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The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected. |
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Massachusetts General Hospital - Living with TSC |
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The Living with TSC Web site is a collaboration between the Herscot Center and WGBH Educational Foundation. Our goal is to provide clear information about the range of medical consequences of tuberous sclerosis complex throughout one's lifetime. |
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| Epilepsy related Podcasts |
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Empowerment Round Table Series |
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Empowerment podcast series includes leading advocates discussing and developing recommendations for eliminating epilepsy associated stigma, improving the standard of care in the epilepsy community and engaging in effective communication with healthcare professionals. This series is brought to you by the Epilepsy Foundation with financial support from Ortho-McNeil Neurologics®, Division of Ortho-McNeil-Janssen Pharmaceuticals, Inc. |
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EpilepsyMoms.com |
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Mulltiple podcasts at EpilepsyMoms.com. Podcasts include discussions on the Ketogenic diet, school relations, and neurotherapy. |
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History- |
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Knowing Epilepsy "The Community" |
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People have known about epilepsy for thousands of years but have not understood it until recently. The ancient Babylonians wrote about the symptoms and causes of epilepsy 3000 years ago......... |
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