Link Catagories:
Informational
Epilepsy Centers
Support Groups
Treatments
Education/ Public Awareness
Fundraising/ Research
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Informational: General, Cause Specific, History
  General-  
       
    The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research.  
       
     
    A collaboration between the MassGeneral Hospital for Children's Pediatric Epilepsy Program and WGBH Educational Foundation. Our goal is to provide clear information about epilepsy in childhood, its diagnosis, and its treatment, and to educate site visitors about the disorder's effects on learning, behavior, and family life.  
       
     
    The Epilepsy Therapy Project exists to overcome the barriers to successful translation of promising new research insights and to make new therapies a reality for patients. We provide financial support and and scientific and business direction to promising new therapies, and we invest in programs and platforms that can take time and costs out of new therapy development. Our key ongoing programs include support of the leading community websites epilepsy.com and epilepsy.com/Professionals, of the Epilepsy Study Consortium (www.epilepsyconsortium.org) and of meetings including the two major international conferences on epilepsy therapy development.  
       
  Cause Specific-  
 
  Davet's Syndrome
   
    Promoting awareness and research about Dravet Syndrome and related genetic, febrile sodium channel epilepsies and to provide resources and support to improve the quality of life for affected individuals and families.
 
       
 
  Tuberous Sclerosis
   
    The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.
         
   
    The Living with TSC Web site is a collaboration between the Herscot Center and WGBH Educational Foundation. Our goal is to provide clear information about the range of medical consequences of tuberous sclerosis complex throughout one's lifetime.
 
       
 
  Tramatic Brain Injury or TBI
   
    Serving Acquired (Includes Traumatic) Brain Injured Individuals and Their Families.
     
   
    The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world. Link points to: NINDS Traumatic Brain Injury Information Page.
     
   
    The American Academy of Neurology is a medical specialty society established to advance the art and science of neurology, and thereby promote the best possible care for patients with neurological disorders. Links of interest: AAN Member Testifies on Veterans' Tramatic Brain Injury/Epilepsy Issues Before Congress and US Senate Introduces AAN-initiated Epilepsy Center Legislation.
 
       
 
Psychogenic Non-Epileptic Seizures
   
   
    An article addressing PNES and their specefic relations to chronic pain.
   
    Information on the symtoms and treatments for joint pain and Fibromyalgia.
   
    Dedicated to education, treatment and finding a cure for Fibromyalgia.
 
       
     
       
 
Epilepsy related Podcasts
   
    Empowerment podcast series includes leading advocates discussing and developing recommendations for eliminating epilepsy associated stigma, improving the standard of care in the epilepsy community and engaging in effective communication with healthcare professionals. This series is brought to you by the Epilepsy Foundation with financial support from Ortho-McNeil Neurologics®, Division of Ortho-McNeil-Janssen Pharmaceuticals, Inc.
   
    Mulltiple podcasts at EpilepsyMoms.com. Podcasts include discussions on the Ketogenic diet, school relations, and neurotherapy.
 
       
  History-  
   
  People have known about epilepsy for thousands of years but have not understood it until recently.  The ancient King Tut's Burial MaskBabylonians wrote about the symptoms and causes of epilepsy 3000 years ago.........  
         
         
   
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